Organized by Recurrent Respiratory Papillomatosis Foundation
Recurrent respiratory papillomatosis, or RRP, is an extremely rare condition caused by a very common virus, HPV. There are many strands of HPV. Strands 6 and 11 lead to RRP by causing benign growths, or papillomas, to form in the airway. These growths obstruct a person's ability to breathe and talk.
RRP can affect children and adults, but the incidence is higher in children. Many children are diagnosed before age 5, and have a lifetime of surgeries ahead of them. But together, we can change that trajectory and fight for a cure. Warrior Count Story: https://youtu.be/rkd7pfxdRiE
The papillomas can be present anywhere in the airway, and are most frequently on the vocal cords. However, they may also migrate to the trachea and lungs, and convert to carcinoma in aggressive cases. Aniko's story: https://youtu.be/SMHJiAfkpJI
These growths are removed via surgery. However, they frequently return, leading to countless surgeries throughout a patient's lifetime.
As you can imagine, these growths and frequent surgeries lead to significant vocal and breathing impairments. Many patients require a tracheostomy to maintain the integrity of their airway, and have significant vocal impairments throughout life. Carter's Story: https://youtu.be/qLwLQXTNCek
Help us find a cure. Help us find an effective, non surgical treatment option. Help us improve the quality of life for these RRP warriors. Morgan's Story: https://youtu.be/OUxrp_vI7wI
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